Timeline

Since being diagnosed with Hodgkin's Lymphoma in early 2009, I have had numerous scans, tests and treatments. Whilst my medical history is quite far from typical for this type of cancer, as the vast majority of patients are cured by the first-line treatment, and a large percentage of those that are not are cured initially are subsequently cured by the second-line treatment, the following details what has been involved in my care to date. (By default, more of an overview of my medical history is shown, but if you would like to see more details, you can do so by ticking the checkboxes immediately below.)

  1. Initial Diagnosis

    1. Date: 23 Feb 2009
      Event: Discussed Symptoms with G.P.
      Result: Performed Chest X-Ray & Referred to Specialist
    2. Date: 27 Feb 2009
      Event: Bone Marrow Biopsy
      Result: Normal
    3. Date: 09 Mar 2009
      Event: CT Scan - Baseline/Investigation
      Result: Mediastinal Masses
    4. Date: 16-19 Mar 2009 & 23-25 Mar 2009
      Event: CT Guided Biopsy of Mediastinal Mass (24 Mar 2009)
      Result: Nodular Sclerosing Hodgkin's Lymphoma - Stage 2B Bulky
    5. Date: 07 Apr 2009
      Event: PET-CT Scan - Baseline/Investigation
      Result: Positive - Areas Identified on Previous CT Scan
    6. Date: 08 Apr 2009
      Event: Started ABVD Chemotherapy - Every 2 Weeks
    7. Date: 08 Apr 2009
      Event: ABVD Chemotherapy - Treatment 1
    8. Date: 20 Apr 2009
      Event: ABVD Chemotherapy - Treatment 2
    9. Date: 05 May 2009
      Event: ABVD Chemotherapy - Treatment 3
    10. Date: 20 May 2009
      Event: ABVD Chemotherapy - Treatment 4
    11. Date: 02 Jun 2009
      Event: PET-CT Scan - Post 4th Treatment
      Result: Negative
    12. Date: 05 Jun 2009
      Event: ABVD Chemotherapy - Treatment 5
    13. Date: 19 Jun 2009
      Event: ABVD Chemotherapy - Treatment 6
    14. Date: 03 Jul 2009
      Event: ABVD Chemotherapy - Treatment 7
    15. Date: 17 Jul 2009
      Event: ABVD Chemotherapy - Treatment 8
    16. Date: 20 Jul 2009
      Event: CT Scan - Post 8th Treatment
      Result: Reduced Size of Mediastinal Masses
    17. Date: 31 Jul 2009
      Event: ABVD Chemotherapy - Treatment 9
    18. Date: 14 Aug 2009
      Event: ABVD Chemotherapy - Treatment 10
    19. Date: 28 Aug 2009
      Event: ABVD Chemotherapy - Treatment 11
    20. Date: 11 Sep 2009
      Event: Finished ABVD Chemotherapy - After 12 Treatments
    21. Date: 11 Sep 2009
      Event: ABVD Chemotherapy - Treatment 12
    22. Date: 14 Sep 2009
      Event: CT Scan - Post 12th Treatment
      Result: Further Reduced Size of Mediastinal Masses
    23. Date: 01 Dec 2009
      Event: CT Scan - Baseline/Investigation
      Result: Further Reduced Size of Mediastinal Masses
  2. First Relapse

    1. Date: 28 Apr 2010
      Event: CT Scan - Baseline/Investigation
      Result: Increased Size of Mediastinal Mass & Pericardial Effusion
    2. Date: 04-07 May 2010
      Event:
      1. Bone Marrow Biopsy (04 May 2010)
      2. Started DHAP Chemotherapy - Every 3 Weeks (05 May 2010)
      3. DHAP Chemotherapy - Treatment 1 (05-07 May 2010)
      Result:
      1. Normal
      2. N/A
      3. N/A
    3. Date: 25-27 May 2010
      Event: DHAP Chemotherapy - Treatment 2
    4. Date: 14 Jun 2010
      Event: CT Scan - Post 2nd Treatment
      Result: Reduced Size of Mediastinal Mass
    5. Date: 22 Jun 2010
      Event: Finished DHAP Chemotherapy - After 3 Treatments
    6. Date: 20-27 Jun 2010
      Event: DHAP Chemotherapy - Treatment 3 (20-22 Jun 2010)
    7. Date: 05-07 Jul 2010
      Event: Stem Cell Harvest (06 Jul 2010)
    8. Date: 23 Jul 2010
      Event: Lung Function Test
    9. Date: 29 Jul 2010
      Event: RNV Scan
    10. Date: 03-24 Aug 2010
      Event:
      1. BEAM Chemotherapy (04-09 Aug 2010)
      2. Autologous Stem Cell Transplant (10 Aug 2010)
    11. Date: 22 Sep 2010
      Event: CT Scan - Post Autologous Stem Cell Transplant
      Result: Further Reduced Size of Mediastinal Mass
    12. Date: 18 Oct 2010
      Event: Started Radiotherapy - 30Gy in 2Gy Fractions on Weekdays
    13. Date: 05 Nov 2010
      Event: Finished Radiotherapy - After 15 Treatments
    14. Date: 24 Jan 2011
      Event: CT Scan - Baseline/Investigation
      Result: Stable Size of Mediastinal Mass
    15. Date: 28 Jan 2011
      Event: Hearing Test
      Result: Tinnitus & Partial Loss of Higher Frequencies
  3. Second Relapse

    1. Date: 11 Jun 2012
      Event: CT Scan - Baseline/Investigation
      Result: Extensive Mediastinal Disease, Pleural Effusion & Pericardial Effusion
    2. Date: 13-19 Jun 2012
      Event:
      1. Echocardiogram (13 Jun 2012)
      2. Drain Pericardial Effusion (13-14 Jun 2012)
      3. Bone Marrow Biopsy (15 Jun 2012)
      4. Started IVE Chemotherapy - Every 3 Weeks (15 Jun 2012)
      5. IVE Chemotherapy - Treatment 1 (15-19 Jun 2012)
      Result:
      1. N/A
      2. N/A
      3. Normal
      4. N/A
      5. N/A
    3. Date: 26 Jun 2012 - 03 Jul 2012
      Event: Identified Infection (Klebsiella Pneumoniae)
    4. Date: 11-15 Jul 2012
      Event: IVE Chemotherapy - Treatment 2
    5. Date: 23 Jul 2012
      Event: Lung Function Test
    6. Date: 23 Jul 2012 - 02 Aug 2012
      Event:
      1. Identified Infection (Klebsiella Pneumoniae)
      2. Echocardiogram (27 Jul 2012)
      3. PET-CT Scan - Post 2nd Treatment (31 Jul 2012)
      Result:
      1. N/A
      2. N/A
      3. Positive - Residual Mediastinal Disease & Pulmonary Involvement - Much Smaller but Active
    7. Date: 06 Aug 2012
      Event: Abandoned IVE Chemotherapy - After 2 Treatments
    8. Date: 10 Sep 2012
      Event: Started Brentuximab Vedotin - Every 3 Weeks
    9. Date: 10 Sep 2012
      Event: Brentuximab Vedotin - Treatment 1
    10. Date: 01 Oct 2012
      Event: Brentuximab Vedotin - Treatment 2
    11. Date: 22 Oct 2012
      Event: Brentuximab Vedotin - Treatment 3
    12. Date: 08 Nov 2012
      Event: Lung Function Test
    13. Date: 16 Nov 2012
      Event: Brentuximab Vedotin - Treatment 4
    14. Date: 22 Nov 2012
      Event: PET-CT Scan - Post 4th Treatment
      Result: Positive - Reduced Mediastinal Disease & Pulmonary Involvement - Slightly Smaller & Slightly Active
    15. Date: 12 Dec 2012
      Event: Finished Brentuximab Vedotin - After 5 Treatments
    16. Date: 12 Dec 2012
      Event: Brentuximab Vedotin - Treatment 5
    17. Date: 03 Jan 2013
      Event: Dental Check-up
    18. Date: 15 Jan 2013
      Event: Echocardiogram
    19. Date: 17 Jan 2013
      Event: Lineogram
    20. Date: 24 Jan 2013 - 22 Feb 2013
      Event:
      1. FMC Chemotherapy (24-30 Jan 2013)
      2. Allogeneic Stem Cell Transplant - 10/10 MUD (31 Jan 2013)
    21. Date: 28 Feb 2013
      Event: Chimerism Blood Test
      Result: 98% Donor
    22. Date: 13 May 2013
      Event: Bone Marrow Biopsy
      Result: Normal
    23. Date: 13 May 2013
      Event: Chimerism Blood Test
      Result: 98% Donor
    24. Date: 16 May 2013
      Event: PET-CT Scan - Post Allogeneic Stem Cell Transplant
      Result: Negative
    25. Date: 20-26 May 2013
      Event:
      1. Identified Infection (Dermabacter Hominis)
      2. Skin Biopsy - Suspected GVHD (22 May 2013)
      Result:
      1. N/A
      2. Inconclusive - Assumed GVHD
    26. Date: 05-10 Jun 2013
      Event: Identified Infection (Respiratory Syncytial Virus)
    27. Date: 27 Jun 2013
      Event: Dental Check-up
    28. Date: 09 Jul 2013
      Event: Chimerism Blood Test
      Result: 98% Donor
    29. Date: 09 Jul 2013
      Event: Skin Biopsy - Suspected GVHD
      Result: Inconclusive - Assumed GVHD
    30. Date: 29 Jul 2013
      Event: CT Scan - Baseline/Investigation
      Result: Reduced Size of Mediastinal Mass
    31. Date: 14-15 Aug 2013
      Event: Painful Knees & High Temperature
    32. Date: 10 Sep 2013
      Event: Started Extracorporeal Photopheresis (ECP) - Every 2 Weeks
    33. Date: 10 & 11 Sep 2013
      Event: Extracorporeal Photopheresis (ECP) - Treatment 1
    34. Date: 24 & 25 Sep 2013
      Event: Extracorporeal Photopheresis (ECP) - Treatment 2
    35. Date: 08 Oct 2013
      Event: Lung Function Test
    36. Date: 08 & 09 Oct 2013
      Event: Extracorporeal Photopheresis (ECP) - Treatment 3
    37. Date: 09-15 Oct 2013
      Event:
      1. Unidentified Infection
      2. CT Scan - Investigation (15 Oct 2013)
      Result:
      1. N/A
      2. Stable Size of Mediastinal Mass
    38. Date: 18-22 Oct 2013
      Event: Unidentified Infection
    39. Date: 23 & 24 Oct 2013
      Event: Extracorporeal Photopheresis (ECP) - Treatment 4
    40. Date: 06 & 07 Nov 2013
      Event: Extracorporeal Photopheresis (ECP) - Treatment 5
    41. Date: 19 Nov 2013 - 12 Dec 2013
      Event:
      1. Identified Infection (Pseudomonas Aeruginosa)
      2. Extracorporeal Photopheresis (ECP) - Treatment 6 (21 & 22 Nov 2013)
      3. Echocardiogram (26 Nov 2013)
      4. Chimerism Blood Test (02 Dec 2013)
      5. Extracorporeal Photopheresis (ECP) - Treatment 7 (04 & 05 Dec 2013)
      6. Total Nail Avulsion - Big Toes (09 Dec 2013)
      Result:
      1. N/A
      2. N/A
      3. N/A
      4. 98% Donor
      5. N/A
      6. N/A
    42. Date: 18 & 19 Dec 2013
      Event: Extracorporeal Photopheresis (ECP) - Treatment 8 - Aborted
    43. Date: 24 Dec 2013
      Event: Lineogram
    44. Date: 07 & 08 Jan 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 8 - Retried
    45. Date: 23 Jan 2014
      Event: Lung Function Test
    46. Date: 23 & 24 Jan 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 9
    47. Date: 05 Feb 2014
      Event: Continued Extracorporeal Photopheresis (ECP) - Every 3 Weeks
    48. Date: 05 & 06 Feb 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 10
    49. Date: 27 & 28 Feb 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 11
    50. Date: 17 Mar 2014
      Event: Continued Extracorporeal Photopheresis (ECP) - Every 4 Weeks
    51. Date: 17 & 18 Mar 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 12
    52. Date: 18 Mar 2014
      Event: Chimerism Blood Test
      Result: 99% Donor
    53. Date: 18 Mar 2014
      Event: Lung Function Test
    54. Date: 15 & 16 Apr 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 13
    55. Date: 16 & 19 May 2014
      Event: Extracorporeal Photopheresis (ECP) - Treatment 14
  4. Third Relapse

    1. Date: 20 May 2014
      Event: CT Scan - Monitoring
      Result: Increased Size of Mediastinal Mass
    2. Date: 27-28 May 2014
      Event: Chest Pain
    3. Date: 03 Jun 2014
      Event: PET-CT Scan - Investigation
      Result: Positive - Active Mediastinal Mass & Hot-Spot on Spine (T11)
    4. Date: 10 Jun 2014 - 07 Jul 2014
      Event:
      1. Painful Lower Back
      2. Paused Extracorporeal Photopheresis (ECP) (10 Jun 2014)
      3. 5 Day Course of 100mg/day Prednisolone (10-14 Jun 2014)
      4. Started Vinblastine Chemotherapy - Every 2 Weeks (12 Jun 2014)
      5. Vinblastine Chemotherapy - Treatment 1 (12 Jun 2014)
      6. MRI Scan - Investigation (17 Jun 2014)
      7. Unidentified Infection (18-24 Jun 2014)
      8. Vertebroplasty for Several Vertebrae (T11-T12 & L1-L5) in Lower Back (02 Jul 2014)
      9. Vinblastine Chemotherapy - Treatment 2 (04 Jul 2014)
      Result:
      1. N/A
      2. N/A
      3. N/A
      4. N/A
      5. N/A
      6. Compression Fractures on Several Vertebrae (T11-T12 & L1-L5) in Lower Back
      7. N/A
      8. N/A
      9. N/A
    5. Date: 18 Jul 2014
      Event: Vinblastine Chemotherapy - Treatment 3
    6. Date: 27-29 Jul 2014
      Event: Unidentified Infection
    7. Date: 01 Aug 2014
      Event: Vinblastine Chemotherapy - Treatment 4
    8. Date: 15 Aug 2014
      Event: Vinblastine Chemotherapy - Treatment 5
    9. Date: 29 Aug 2014
      Event: Vinblastine Chemotherapy - Treatment 6
    10. Date: 12 Sep 2014
      Event: Vinblastine Chemotherapy - Treatment 7
    11. Date: 26 Sep 2014
      Event: Vinblastine Chemotherapy - Treatment 8
    12. Date: 05-10 Oct 2014
      Event:
      1. Chest Pain & Unidentified Infection
      2. Vinblastine Chemotherapy - Treatment 9 (10 Oct 2014)
    13. Date: 24 Oct 2014
      Event: Vinblastine Chemotherapy - Treatment 10
    14. Date: 31 Oct 2014 - 02 Nov 2014
      Event: Anemic
    15. Date: 7 Nov 2014
      Event: Vinblastine Chemotherapy - Treatment 11
    16. Date: 27 Nov 2014
      Event: PET-CT Scan - Monitoring
      Result: Positive - Stable Disease
    17. Date: 28 Nov 2014
      Event: Vinblastine Chemotherapy - Treatment 12