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Initial Diagnosis
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Date: 23 Feb 2009 Event: Discussed Symptoms with G.P. Result: Performed Chest X-Ray & Referred to Specialist -
Date: 27 Feb 2009 Event: Bone Marrow Biopsy Result: Normal -
Date: 09 Mar 2009 Event: CT Scan - Baseline/Investigation Result: Mediastinal Masses -
Date: 16-19 Mar 2009 & 23-25 Mar 2009 Event: CT Guided Biopsy of Mediastinal Mass (24 Mar 2009) Result: Nodular Sclerosing Hodgkin's Lymphoma - Stage 2B Bulky -
Date: 07 Apr 2009 Event: PET-CT Scan - Baseline/Investigation Result: Positive - Areas Identified on Previous CT Scan -
Date: 08 Apr 2009 Event: Started ABVD Chemotherapy - Every 2 Weeks -
Date: 08 Apr 2009 Event: ABVD Chemotherapy - Treatment 1 -
Date: 20 Apr 2009 Event: ABVD Chemotherapy - Treatment 2 -
Date: 05 May 2009 Event: ABVD Chemotherapy - Treatment 3 -
Date: 20 May 2009 Event: ABVD Chemotherapy - Treatment 4 -
Date: 02 Jun 2009 Event: PET-CT Scan - Post 4th Treatment Result: Negative -
Date: 05 Jun 2009 Event: ABVD Chemotherapy - Treatment 5 -
Date: 19 Jun 2009 Event: ABVD Chemotherapy - Treatment 6 -
Date: 03 Jul 2009 Event: ABVD Chemotherapy - Treatment 7 -
Date: 17 Jul 2009 Event: ABVD Chemotherapy - Treatment 8 -
Date: 20 Jul 2009 Event: CT Scan - Post 8th Treatment Result: Reduced Size of Mediastinal Masses -
Date: 31 Jul 2009 Event: ABVD Chemotherapy - Treatment 9 -
Date: 14 Aug 2009 Event: ABVD Chemotherapy - Treatment 10 -
Date: 28 Aug 2009 Event: ABVD Chemotherapy - Treatment 11 -
Date: 11 Sep 2009 Event: Finished ABVD Chemotherapy - After 12 Treatments -
Date: 11 Sep 2009 Event: ABVD Chemotherapy - Treatment 12 -
Date: 14 Sep 2009 Event: CT Scan - Post 12th Treatment Result: Further Reduced Size of Mediastinal Masses -
Date: 01 Dec 2009 Event: CT Scan - Baseline/Investigation Result: Further Reduced Size of Mediastinal Masses
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First Relapse
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Date: 28 Apr 2010 Event: CT Scan - Baseline/Investigation Result: Increased Size of Mediastinal Mass & Pericardial Effusion -
Date: 04-07 May 2010 Event: - Bone Marrow Biopsy (04 May 2010)
- Started DHAP Chemotherapy - Every 3 Weeks (05 May 2010)
- DHAP Chemotherapy - Treatment 1 (05-07 May 2010)
Result: - Normal
- N/A
- N/A
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Date: 25-27 May 2010 Event: DHAP Chemotherapy - Treatment 2 -
Date: 14 Jun 2010 Event: CT Scan - Post 2nd Treatment Result: Reduced Size of Mediastinal Mass -
Date: 22 Jun 2010 Event: Finished DHAP Chemotherapy - After 3 Treatments -
Date: 20-27 Jun 2010 Event: DHAP Chemotherapy - Treatment 3 (20-22 Jun 2010) -
Date: 05-07 Jul 2010 Event: Stem Cell Harvest (06 Jul 2010) -
Date: 23 Jul 2010 Event: Lung Function Test -
Date: 29 Jul 2010 Event: RNV Scan -
Date: 03-24 Aug 2010 Event: - BEAM Chemotherapy (04-09 Aug 2010)
- Autologous Stem Cell Transplant (10 Aug 2010)
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Date: 22 Sep 2010 Event: CT Scan - Post Autologous Stem Cell Transplant Result: Further Reduced Size of Mediastinal Mass -
Date: 18 Oct 2010 Event: Started Radiotherapy - 30Gy in 2Gy Fractions on Weekdays -
Date: 05 Nov 2010 Event: Finished Radiotherapy - After 15 Treatments -
Date: 24 Jan 2011 Event: CT Scan - Baseline/Investigation Result: Stable Size of Mediastinal Mass -
Date: 28 Jan 2011 Event: Hearing Test Result: Tinnitus & Partial Loss of Higher Frequencies
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Second Relapse
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Date: 11 Jun 2012 Event: CT Scan - Baseline/Investigation Result: Extensive Mediastinal Disease, Pleural Effusion & Pericardial Effusion -
Date: 13-19 Jun 2012 Event: - Echocardiogram (13 Jun 2012)
- Drain Pericardial Effusion (13-14 Jun 2012)
- Bone Marrow Biopsy (15 Jun 2012)
- Started IVE Chemotherapy - Every 3 Weeks (15 Jun 2012)
- IVE Chemotherapy - Treatment 1 (15-19 Jun 2012)
Result: - N/A
- N/A
- Normal
- N/A
- N/A
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Date: 26 Jun 2012 - 03 Jul 2012 Event: Identified Infection (Klebsiella Pneumoniae) -
Date: 11-15 Jul 2012 Event: IVE Chemotherapy - Treatment 2 -
Date: 23 Jul 2012 Event: Lung Function Test -
Date: 23 Jul 2012 - 02 Aug 2012 Event: - Identified Infection (Klebsiella Pneumoniae)
- Echocardiogram (27 Jul 2012)
- PET-CT Scan - Post 2nd Treatment (31 Jul 2012)
Result: - N/A
- N/A
- Positive - Residual Mediastinal Disease & Pulmonary Involvement - Much Smaller but Active
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Date: 06 Aug 2012 Event: Abandoned IVE Chemotherapy - After 2 Treatments -
Date: 10 Sep 2012 Event: Started Brentuximab Vedotin - Every 3 Weeks -
Date: 10 Sep 2012 Event: Brentuximab Vedotin - Treatment 1 -
Date: 01 Oct 2012 Event: Brentuximab Vedotin - Treatment 2 -
Date: 22 Oct 2012 Event: Brentuximab Vedotin - Treatment 3 -
Date: 08 Nov 2012 Event: Lung Function Test -
Date: 16 Nov 2012 Event: Brentuximab Vedotin - Treatment 4 -
Date: 22 Nov 2012 Event: PET-CT Scan - Post 4th Treatment Result: Positive - Reduced Mediastinal Disease & Pulmonary Involvement - Slightly Smaller & Slightly Active -
Date: 12 Dec 2012 Event: Finished Brentuximab Vedotin - After 5 Treatments -
Date: 12 Dec 2012 Event: Brentuximab Vedotin - Treatment 5 -
Date: 03 Jan 2013 Event: Dental Check-up -
Date: 15 Jan 2013 Event: Echocardiogram -
Date: 17 Jan 2013 Event: Lineogram -
Date: 24 Jan 2013 - 22 Feb 2013 Event: - FMC Chemotherapy (24-30 Jan 2013)
- Allogeneic Stem Cell Transplant - 10/10 MUD (31 Jan 2013)
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Date: 28 Feb 2013 Event: Chimerism Blood Test Result: 98% Donor -
Date: 13 May 2013 Event: Bone Marrow Biopsy Result: Normal -
Date: 13 May 2013 Event: Chimerism Blood Test Result: 98% Donor -
Date: 16 May 2013 Event: PET-CT Scan - Post Allogeneic Stem Cell Transplant Result: Negative -
Date: 20-26 May 2013 Event: - Identified Infection (Dermabacter Hominis)
- Skin Biopsy - Suspected GVHD (22 May 2013)
Result: - N/A
- Inconclusive - Assumed GVHD
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Date: 05-10 Jun 2013 Event: Identified Infection (Respiratory Syncytial Virus) -
Date: 27 Jun 2013 Event: Dental Check-up -
Date: 09 Jul 2013 Event: Chimerism Blood Test Result: 98% Donor -
Date: 09 Jul 2013 Event: Skin Biopsy - Suspected GVHD Result: Inconclusive - Assumed GVHD -
Date: 29 Jul 2013 Event: CT Scan - Baseline/Investigation Result: Reduced Size of Mediastinal Mass -
Date: 14-15 Aug 2013 Event: Painful Knees & High Temperature -
Date: 10 Sep 2013 Event: Started Extracorporeal Photopheresis (ECP) - Every 2 Weeks -
Date: 10 & 11 Sep 2013 Event: Extracorporeal Photopheresis (ECP) - Treatment 1 -
Date: 24 & 25 Sep 2013 Event: Extracorporeal Photopheresis (ECP) - Treatment 2 -
Date: 08 Oct 2013 Event: Lung Function Test -
Date: 08 & 09 Oct 2013 Event: Extracorporeal Photopheresis (ECP) - Treatment 3 -
Date: 09-15 Oct 2013 Event: - Unidentified Infection
- CT Scan - Investigation (15 Oct 2013)
Result: - N/A
- Stable Size of Mediastinal Mass
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Date: 18-22 Oct 2013 Event: Unidentified Infection -
Date: 23 & 24 Oct 2013 Event: Extracorporeal Photopheresis (ECP) - Treatment 4 -
Date: 06 & 07 Nov 2013 Event: Extracorporeal Photopheresis (ECP) - Treatment 5 -
Date: 19 Nov 2013 - 12 Dec 2013 Event: - Identified Infection (Pseudomonas Aeruginosa)
- Extracorporeal Photopheresis (ECP) - Treatment 6 (21 & 22 Nov 2013)
- Echocardiogram (26 Nov 2013)
- Chimerism Blood Test (02 Dec 2013)
- Extracorporeal Photopheresis (ECP) - Treatment 7 (04 & 05 Dec 2013)
- Total Nail Avulsion - Big Toes (09 Dec 2013)
Result: - N/A
- N/A
- N/A
- 98% Donor
- N/A
- N/A
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Date: 18 & 19 Dec 2013 Event: Extracorporeal Photopheresis (ECP) - Treatment 8 - Aborted -
Date: 24 Dec 2013 Event: Lineogram -
Date: 07 & 08 Jan 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 8 - Retried -
Date: 23 Jan 2014 Event: Lung Function Test -
Date: 23 & 24 Jan 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 9 -
Date: 05 Feb 2014 Event: Continued Extracorporeal Photopheresis (ECP) - Every 3 Weeks -
Date: 05 & 06 Feb 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 10 -
Date: 27 & 28 Feb 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 11 -
Date: 17 Mar 2014 Event: Continued Extracorporeal Photopheresis (ECP) - Every 4 Weeks -
Date: 17 & 18 Mar 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 12 -
Date: 18 Mar 2014 Event: Chimerism Blood Test Result: 99% Donor -
Date: 18 Mar 2014 Event: Lung Function Test -
Date: 15 & 16 Apr 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 13 -
Date: 16 & 19 May 2014 Event: Extracorporeal Photopheresis (ECP) - Treatment 14
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Third Relapse
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Date: 20 May 2014 Event: CT Scan - Monitoring Result: Increased Size of Mediastinal Mass -
Date: 27-28 May 2014 Event: Chest Pain -
Date: 03 Jun 2014 Event: PET-CT Scan - Investigation Result: Positive - Active Mediastinal Mass & Hot-Spot on Spine (T11) -
Date: 10 Jun 2014 - 07 Jul 2014 Event: - Painful Lower Back
- Paused Extracorporeal Photopheresis (ECP) (10 Jun 2014)
- 5 Day Course of 100mg/day Prednisolone (10-14 Jun 2014)
- Started Vinblastine Chemotherapy - Every 2 Weeks (12 Jun 2014)
- Vinblastine Chemotherapy - Treatment 1 (12 Jun 2014)
- MRI Scan - Investigation (17 Jun 2014)
- Unidentified Infection (18-24 Jun 2014)
- Vertebroplasty for Several Vertebrae (T11-T12 & L1-L5) in Lower Back (02 Jul 2014)
- Vinblastine Chemotherapy - Treatment 2 (04 Jul 2014)
Result: - N/A
- N/A
- N/A
- N/A
- N/A
- Compression Fractures on Several Vertebrae (T11-T12 & L1-L5) in Lower Back
- N/A
- N/A
- N/A
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Date: 18 Jul 2014 Event: Vinblastine Chemotherapy - Treatment 3 -
Date: 27-29 Jul 2014 Event: Unidentified Infection -
Date: 01 Aug 2014 Event: Vinblastine Chemotherapy - Treatment 4 -
Date: 15 Aug 2014 Event: Vinblastine Chemotherapy - Treatment 5 -
Date: 29 Aug 2014 Event: Vinblastine Chemotherapy - Treatment 6 -
Date: 12 Sep 2014 Event: Vinblastine Chemotherapy - Treatment 7 -
Date: 26 Sep 2014 Event: Vinblastine Chemotherapy - Treatment 8 -
Date: 05-10 Oct 2014 Event: - Chest Pain & Unidentified Infection
- Vinblastine Chemotherapy - Treatment 9 (10 Oct 2014)
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Date: 24 Oct 2014 Event: Vinblastine Chemotherapy - Treatment 10 -
Date: 31 Oct 2014 - 02 Nov 2014 Event: Anemic -
Date: 7 Nov 2014 Event: Vinblastine Chemotherapy - Treatment 11 -
Date: 27 Nov 2014 Event: PET-CT Scan - Monitoring Result: Positive - Stable Disease -
Date: 28 Nov 2014 Event: Vinblastine Chemotherapy - Treatment 12
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A few years ago, a friend told me that I over-analyse things, but I'm not sure really; I'm still thinking about it.
Timeline
Since being diagnosed with Hodgkin's Lymphoma in early 2009, I have had numerous scans, tests and treatments. Whilst my medical history is quite far from typical for this type of cancer, as the vast majority of patients are cured by the first-line treatment, and a large percentage of those that are not are cured initially are subsequently cured by the second-line treatment, the following details what has been involved in my care to date. (By default, more of an overview of my medical history is shown, but if you would like to see more details, you can do so by ticking the checkboxes immediately below.)
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